The official trailer of Robin’s wish, a documentary about Robin Williams’ final days before he died of diffuse Lewy dementia, a degenerative neurological disorder that went undetected until his death Video: Vertical Entertainment

Robin Williams died of diffuse Lewy dementia, a degenerative neurological disorder that went undetected until his death.The disease that attacks the brain made Williams susceptible to delusions, anxiety and tremors Photo: Peter Kramer / Getty

In Robin’s wish, a documentary film about the last days of Robin Williams, the comedian’s widow, Susan Schneider Williams, recalls the moment she was asked to read the coroner’s report on her husband’s death. p>

“There were no surprises as to what was in his toxicology,” says Schneider Williams. “I knew my honey was clean and sober They sat me down and basically said Robin died of diffuse Lewy dementia. They started talking about neurodegeneration. He was out of his mind [the coroner] described how these Lewy bodies were in almost every region of his brain It makes sense why he was experiencing what he was experiencing Cognitive Function] Moods Movement Depression Anxiety Anxiety Hallucinations Delusions Severe sleep disorders Paranoia They were all affected I remember walking down the stairs from this facility and feeling: Now I have this Names ”

Lewy body dementia is a degenerative neurological disorder that went undetected by every doctor he visited at the time of Williams’ death.The disease that attacks the brain made Williams prone to delusions, anxiety, and tremors

Shawn Levy, director of Williams on the Night at the Museum trilogy, recalls the increasingly panicked star hiding a trembling arm and having trouble remembering his lines when he finished the final installment, Night in the museum: secret of the tomb “turned

“When Robin called me at 10pm, 2am, and 4am and said, ‘Is it usable? Is any of this useful? I suck what’s going on? “Says Levy

Schneider Williams’ appointment as a coroner came in October 2014, a few months after the star met on Nov. August Had Taken His Life Various unsavory narratives surfaced in the days following his suicide. Wildly speculative media reports hinted at addiction or depression, some pointed to the recent cancellation of his CBS sitcom The Crazy Ones and its dwindling box office appeal under the heading, “Inside the Haunted Dark Side of America’s Funniest Man “suggested the National Enquirer that Williams had never recovered from the death of his friend John Belushi and was” destroyed by years of drug and alcohol abuse “

“You have this guy who is infinitely funny and infinitely smart and infinitely quick and smart and suddenly just disappears,” says Tylor Norwood, director of Robin’s Desire. “After he passes, everyone in the media guesses what it is Maybe he was depressed? Maybe he was doing drugs? Maybe he ran out of money And none of it was true I don’t think the people in the media wanted to destroy Robin Williams’ legacy You had a job to do And you will always find a friend of a friend of a friend who says money problems or depression / p>

“The media couldn’t know the truth if Robin didn’t know himself Ted Turner, the great industrialist and media magnet, has Lewy dementia. He’s had the experience of telling people: This is going to happen to me. He’s in that right now late stages and it’s very sad for the family But in some ways it’s manageable if you know what that thing is Robin never had that.Just he and his wife felt that something was deeply wrong, but she got the name only at the autopsy ”

At the time of his suicide, Williams had recently been diagnosed with Parkinson’s disease. He was told the condition was early and mild but knew that this could not explain the symptoms he was experiencing. He asked his doctor, “I did Do I have Alzheimer’s disease? Do I have dementia? Am I schizophrenic? ”

“Lewy body dementia is a devastating disease,” explains Prof Bruce Miller, director of the Memory and Aging Center at the University of California at San Francisco and a research contributor to Robin’s wish, “It’s a killer It’s fast. It’s progressive. When I saw Robin’s brain be affected, I found that this was as devastating a form of Lewy body dementia as I had ever seen it. Almost no area was left untouched. It really amazed me that Robin could walk or move at all ”

Robin’s Desire brings 17 of Williams’ friends and colleagues, as well as medical experts, together to speak about the comedian’s demise, many of whom are first speaking about his symptoms and difficulties

“I felt I was loyal to him because I didn’t talk about the fights we saw,” says Shawn Levy. “That it’s nobody’s business Robin was at the mercy of something that [he] couldn’t control And worse than not being able to control it and not even knowing about it ”

David E Kelly, creator of Chicago Hope and Big Little Lies, says, “I think it is important that the truth come out because there are so many positive things that Robin stood for and that we all want to believe in”We want to believe in him. And there is a risk that his suicide will make people think: Well, he wasn’t what we thought we didn’t know him, but we did”

The Williams who shows up in Robin’s wish is a warm, brilliant, generous soul who quickly rushed to the side of college mate Christopher Reeve when the Superman star suffered a spinal cord injury after a riding accident

“He was the first to show up when I was really in trouble,” Reeve told an interviewer before his death in 2004 “He came here one afternoon and thank goodness there is a seat belt in this chair because I laughing would have fallen out ”

There are some lovely moments against the larger tragedy that frames Robin’s wish we see Williams improvising for the role of genius in Aladdin and putting the same energy and wit into the weekly night of improvisation at his local comedy club, typically he lived not in Hollywood, but in Marin County, where he enjoyed visiting neighbors and cycling with friends, a pastime he took up after the death of John Belushi

He met his wife Susan in an Apple store He surprised her when he showed up at their next 12-stage program meeting. He loved entertaining US troops and visited Afghanistan and Iraq many times

It’s a life and legacy, notes Norwood, that shouldn’t be overshadowed by his death. “When I was interviewing people for the film, I asked when we last made one of his films,” says the director. “And they’d say three or four years ago.Usually whatever matched that number perfectly when he died.People who got the idea they couldn’t go back there that it felt weird.They assumed that maybe Robin wasn’t like that good was like the things he had created that maybe he had that darker side

“This is a narrative I think we like to translate to comedians. They are like sad clowns in their personal lives. They are upset and struggling, but they come alive on stage. But that wasn’t true for Robin. There’s the Chris Farrellys and John Belushis of the World He wasn’t one of those guys He wasn’t just that wild and crazy comedian He had a deep connection to the soul and the ability to transform this for us as audiences I hope when people see this movie they do as soon as the credits roll in, mrs Put on Doubtfire or Hook or Good Will Hunting ”

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